| Date & Time: | Thursday, April 28, 2011
more on this date
7:00 PM |
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The Oshman Family JCC presents:
Unzip Your Genes: Jewish Genetic Awareness
Thursday, April 28, 7:00pm-9:00pm, Palo Alto
MORE INFO: www.paloaltojcc.org/arts
Because Ashkenazi Jews (Jews of Eastern European & Russian origin) have a significantly higher incidence for many genetic disorders than the general population, it's important for all Jews who intend to have children to understand the genetic implications.
The Jewish community did a phenomenal job in educating themselves about Tay-Sachs and the advent of carrier testing in the 1970s and 80s. But somewhere along the way they forgot to continue that educational process as the list of "Jewish disorders" increased beyond previous understanding.
Unzip Your Genes will combine a biology lesson, a genetics primer and a review of Jewish migration over the past 2000 years. The panel will explore the diagnosis, management and treatment of Ashkenazi Jewish genetic conditions with a focus on the most common disorder - Goucher Disease. Though lesser known than Tay-Sachs disease, Gaucher disease is two and half times more prevalent within the Ashkenazi population.
PANELISTS
Seymour Packman, PhD, Professor of Pediatrics at the UCSF School of Medicine. He directs the American Board of Medical Genetics Training Program at UCSF and is Director of the Biochemical Genetics Service of that Medical Center. Dr. Packman also serves as Director of the UCSF-Stanford Lysosomal Disease Center and the UCSF Neurometabolic Program and Clinics.
Gary S. Frohlich, MS, a Certified Genetics Counselor & Patient Education Liaison for Genzyme Corporation. He lectures widely and has authored numerous articles on Goucher disease research, testing and prevention. In addition to understanding the medical aspects of Gaucher disease, Mr. Frohlich is an expert on how that disease and other disorders came to affect the Ashkenazi Jewish community.
Rabbi David Booth
Congregation Kol Emeth, Palo Alto
Has a 14 year old son living with Gaucher's Disease
Rachel Koff
Genetic Counseling Student, CSU/UCSF Genetic Counseling Program
Dessert, coffee and tea will be served.
DATE/TIME:
Thursday, April 28
7:00pm-9:00pm
LOCATION:
Oshman Family JCC, Conference Room F401 (4th floor above the theater)
3921 Fabian Way
Palo Alto, CA, 94303
COST/REGISTRATION:
$8 Members, Hadassah & Students; $12 Non-Members; $15 at the door, space permitting.
www.paloaltojcc.org/arts
MORE INFO:
Website: www.paloaltojcc.org/arts
Email: rsiegel@paloaltojcc.org
Phone: 650-223-8605
Contact: Rebecca Y. Siegel
About The Oshman Family JCC:
The Oshman Family JCC aspires to be a Jewish neighborhood where all are welcome. It serves as a nexus of diverse Jewish communities that opens doors and creates connections for rich, robust and rewarding experiences. The JCC establishes common ground, uniting Jewish institutions, groups and individuals for the betterment of the whole community.
Unzip Your Genes: Jewish Genetic Awareness
Thursday, April 28, 7:00pm-9:00pm, Palo Alto
MORE INFO: www.paloaltojcc.org/arts
Because Ashkenazi Jews (Jews of Eastern European & Russian origin) have a significantly higher incidence for many genetic disorders than the general population, it's important for all Jews who intend to have children to understand the genetic implications.
The Jewish community did a phenomenal job in educating themselves about Tay-Sachs and the advent of carrier testing in the 1970s and 80s. But somewhere along the way they forgot to continue that educational process as the list of "Jewish disorders" increased beyond previous understanding.
Unzip Your Genes will combine a biology lesson, a genetics primer and a review of Jewish migration over the past 2000 years. The panel will explore the diagnosis, management and treatment of Ashkenazi Jewish genetic conditions with a focus on the most common disorder - Goucher Disease. Though lesser known than Tay-Sachs disease, Gaucher disease is two and half times more prevalent within the Ashkenazi population.
PANELISTS
Seymour Packman, PhD, Professor of Pediatrics at the UCSF School of Medicine. He directs the American Board of Medical Genetics Training Program at UCSF and is Director of the Biochemical Genetics Service of that Medical Center. Dr. Packman also serves as Director of the UCSF-Stanford Lysosomal Disease Center and the UCSF Neurometabolic Program and Clinics.
Gary S. Frohlich, MS, a Certified Genetics Counselor & Patient Education Liaison for Genzyme Corporation. He lectures widely and has authored numerous articles on Goucher disease research, testing and prevention. In addition to understanding the medical aspects of Gaucher disease, Mr. Frohlich is an expert on how that disease and other disorders came to affect the Ashkenazi Jewish community.
Rabbi David Booth
Congregation Kol Emeth, Palo Alto
Has a 14 year old son living with Gaucher's Disease
Rachel Koff
Genetic Counseling Student, CSU/UCSF Genetic Counseling Program
Dessert, coffee and tea will be served.
DATE/TIME:
Thursday, April 28
7:00pm-9:00pm
LOCATION:
Oshman Family JCC, Conference Room F401 (4th floor above the theater)
3921 Fabian Way
Palo Alto, CA, 94303
COST/REGISTRATION:
$8 Members, Hadassah & Students; $12 Non-Members; $15 at the door, space permitting.
www.paloaltojcc.org/arts
MORE INFO:
Website: www.paloaltojcc.org/arts
Email: rsiegel@paloaltojcc.org
Phone: 650-223-8605
Contact: Rebecca Y. Siegel
About The Oshman Family JCC:
The Oshman Family JCC aspires to be a Jewish neighborhood where all are welcome. It serves as a nexus of diverse Jewish communities that opens doors and creates connections for rich, robust and rewarding experiences. The JCC establishes common ground, uniting Jewish institutions, groups and individuals for the betterment of the whole community.
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